Pediatric GIST specialists

Because pediatric GIST is so rare, there are few true Pediatric GIST specialists. In June, 2008, the first gathering of pediatric GIST experts occurred at the first National Institutes of Health (NIH) Pediatric GIST clinic. The specialists included national leaders in the field of GIST and Pediatric GIST. This included geneticists, medical oncologists, pediatric oncologists, pediatric surgeons, pathologists and endocrinologists.


Antonescu Dr. Cristina Antonescu Pathologist
Memorial Sloan-Kettering Cancer Center
Carney Dr. J. Aidan Carney (retired) Pathologist
Mayo Clinic
Demetri Dr. George Demetri Medical Oncologist
Dana Farber Cancer Institute
Helman Dr. Lee Helman Pediatric Oncologist, head of the Molecular Oncology Section
National Cancer Institute
Janeway Dr. Katherine Janeway Pediatric Oncologist
Dana Farber Cancer Institute
Su Young Kim Dr. Su Young Kim Pediatric Oncologist
National Cancer Institute
LaQuaglia Dr. Michael LaQuaglia Pediatric Surgeon
Memorial Sloan-Kettering Cancer Center
Pappo Dr. Alberto Pappo Pediatric Oncologist
St. Jude's Hospital
Stratakis Dr. Constantine Stratakis Pediatric Endocrinologist and Geneticist
National Institute of Child Health and Human Development
Dr. Jonathan Trent

Medical Oncologist
Assistant Professor
M.D. Anderson Cancer Center

Dr. Margaret von Mehren

Medical Oncologist
Director, Sarcoma Program
Fox Chase Cancer Center


For local treatment, it is important to find doctors experienced in GIST. This experience comes in two basic types; experts in pediatric cancers and experts in adult GIST cancer. Both have unique perspectives and experiences. The best approach might be when doctors from both fields collaborate with each other.